HBA Milan presents

Rare Diseases - A Long Journey to Help Patients Without Therapeutic Alternatives

Date and time
Monday, 25 November
06:00PM - 08:30PM CET
Event Contact
Mariangela Prada
12. Continues to learn, grow and transform
Event sponsor


Compared to widespread conditions that strike hundreds of millions of people, most of rare diseases receive little attention because they affect only thousands or sometimes only hundreds of patients worldwide. But looking at rare diseases as a collective entity, there are approximately 350 million people living with a rare disease around the globe. And rare diseases touch more than just the patient: they also impact families, friends, caregivers, physicians, and society as a whole.

Join us on a reflection on how to address challenges regarding rare diseases! Panelists from corporate, institutions and non-profit organizations will be discussing about this hot topics, exploring the changes and connecting on future expectations for patients and caregivers as they engage in their healthcare journey.

Special instructions(e.g., parking information): Gioia underground station 10-min walk

06:00PM-06:45PM     Registration and networking
06:45PM-07:00PM     Introduction of HBA Milan
07:00PM-08:15PM     Program
08:15PM-08:45PM     Conclusion and networking

Registration information
Event is open to: HBA members and nonmembers
Online registration deadline: 11/25/2019
Onsite(walk-in) registration: Is allowed

    Onsite registration is not recommended. If you choose to register onsite, please arrive at least fifteen
    minutes early and be prepared to use your smartphone/mobile device to complete the transaction.
     Nonmembers are advised to create an HBA profile prior to arriving.

This event refundable.

Featured speakers

Erica  Diana
Dirigente Laboratorio Documentazione e Ricerca Malattie Rare
Mario Negri
lamberto  dionigi

Dompé Farmaceutici s.p.a.
Tommasina  Iorno
vice presidente
Emmanuele  Monti
Presidente Commissione Sanità Regione Lombardia
Regione Lombardia
Mariangela  Prada
Patient Access Director
Intexo Società Benefit
Entela  Xoxi

ALTEMS - Alta scuola di Economia e Management dei Sistemi Sanitari - Università Cattolica Roma
Learning Objectives
1. Get a better understanding of the complex access pathway for orphan drugs in Italy and in Europe.
2. Continue to learn, grow and transform by seeking experiences and opportunities to improve knowledge, skills and behavior; remains a life-long learner.
3. Fosters innovation by translating insights into ideas and shares with colleagues and stakeholders

Registration information

The registration button at the bottom of the page will not show if online registration has closed or if the event has reached capacity. If you are a guest and the registration button is not showing, it may be that this is a member-only event. Read more about the benefits of membership or contact us about membership.

The HBA will make reasonable modifications to policies and programs to ensure that people with special needs have an equal opportunity to enjoy all of its programs. Contact us if you require special accommodations for this event.

 Price LevelRegular
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Registration: Regular Registration

 Member - Euro€26.00
 Non-Member - Euro€40.00
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Registration: Sponsor Employee Registration

 Member - Euro€26.00
 Non-Member - Euro€26.00

By registering for this event, you acknowledge that you may be photographed, videotaped and/or audio-taped during the course of the meeting and hereby give permission for your image, voice, or survey comments to be used in education, training, promotion and/or trade and communications media by the Healthcare Businesswomen's Association in any and all media throughout the world, without restriction as to frequency or duration of usage.