RTP Signature Event: Disruptive Drug Development with Sally Okun, PatientsLikeMe

Event details
Sally Okun, Vice President for Advocacy, Policy and Patient Safety for PatientsLikeMe will be our chapter’s featured speaker for our 2014 signature event, “Disruptive Drug Development.”
Sally will explore how dynamic patient engagement is changing the face of drug development. She will discuss how patients are engaging in advocacy efforts, participating in patient-centered research and contributing their health data in innovative ways to hasten the availability of newer and better interventions for their specific disease states. Patient generated health data and involvement of this kind represents a departure from the traditional drug development model. Sally has been with PatientsLikeMe since 2008 and leads the company’s advocacy, policy and patient safety initiatives on a national and global level. Prior to joining PatientsLikeMe, Sally was a palliative care nurse specializing in care, clinical research, and education for serious and advancing illness. She has presented at TEDMED and other life science conferences.

Please mark your calendars now and plan to join us for an insightful and thought-provoking evening.

Learning objectives
1. Describe how patient participation and engagement is influencing the focus and prioritization of drug development within the life science industry.
2. Discuss the opportunities for life science companies to actively engage patients in all phases of the drug product life cycle.
3. Explain how patient generated and reported data can increase understanding and continuous learning about the real world impact of medical interventions.
4. Detail how social media and social networks are changing the way patients exchange health information and the potential to disrupt next generation drug development.

Agenda
5:30 PM - 6:15 PM   Registration and networking
6:15 PM - 6:30 PM   Welcome/opening remarks
6:30 PM - 8:00 PM   Program/speaker/Q&A
8:00 PM - 8:30 PM   Final announcements/closing remarks

Event location
Biogen Idec
5000 Davis Drive Bldg 26
Research Triangle Park, NC 27709
919.395.4144

Directions

Special instructions:
Once you enter our site, Building 26 is to the right. You will be directed to park in our large parking deck.

Sponsor

Speakers
Sally Okun, RN, MMHS
Vice president for advocacy, policy and patient safety, PatientsLikeMe

Registration information
Event is open to: HBA members and nonmembers
Online Registration deadline: 9/15/2014
Onsite (walk-in) registration: Is allowed

Member rate:
$30 until 9/15/14
$35 after 9/15/14

Nonmember rate:
$40 until 9/15/14
$45 after 9/15/14

Capacity
Is capacity limited? Yes
Space is limited to 150 registrants.

Cancellations/refunds
Is this event refundable? Yes
If yes, must be submitted in writing to events@hbanet.org by 09/10/2014; no refunds are available after this date.

Event questions/support
- Program contact for event details: Contact email shyra@eichhornevents.com and/or phone (614) 565-8104
- Membership questions: membership@hbanet.org or 973-575-0606 ext 1
- Trouble with online registration: events@hbanet.org or 973-575-0606 ext 3

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Pricing

	Member	Non-Member
Regular Registration	$35.00 / €30.00	$45.00 / €39.00

Members receive up to 50 percent discount

Event Policies

Photography Policy
By registering for this event, you acknowledge that you may be photographed, videotaped, and/or audio-taped during the meeting and hereby give permission for your image, voice, or survey comments to be used in education, training, promotion, and/or trade and communications media by the Healthcare Businesswomen's Association in any and all media throughout the world, without restriction as to frequency or duration of usage.

COVID-19 Policy
The HBA requires that all persons who participate in in-person events do so at their own risk and that each participant agrees to the following agreement before taking part in the activity and urges all participants to act in such a manner as to protect their own safety and the safety of others.

By registering for this event, I fully understand that my participation in the program is purely voluntary. I desire to participate and agree to act reasonably and prudently under the circumstances. I further understand that any HBA volunteers participating in the activity will act individually and will not represent the HBA. As a condition to my participation the activity, I waive and release the HBA and their officers, employees, and agents from any claim that I may have for any damage to property or injury to my person that may result in whole or in part from my participation.

Special Needs Policy
The HBA will make reasonable modifications to policies and programs to ensure that people with special needs can enjoy all of its programs. Contact us if you require special accommodations for this event.