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Redefining Bench to Bedside: Transformative Therapies for Rare Diseases

Thu, Jun 13, 2019   5:30 PM - 11:59 PM

Alnylam Pharmaceuticals, Cambridge, MA

Learn about unique challenges and opportunities in rare diseases and hear success stories of transformative therapies for this small but mighty population.

HBA New England Region presents

Redefining Bench to Bedside: Transformative Therapies for Rare Diseases

Although uncommon in the general population, over 7000 rare diseases affect more than 30 million Americans and 350 million people globally. Rare diseases present many unique challenges for patients and physicians, from diagnosis to treatment and for biopharma companies, from discovery to commercialization.

Please join us for this HBA New England region Women in Science event to learn about unique challenges and opportunities in rare diseases. The program will feature success stories of transformative therapies, highlighting scientific breakthroughs and innovative commercialization strategies, that have ultimately delivered life-changing medicines to this small but mighty population.

Healthcare industry professionals at all levels who are interested in learning about rare diseases and transformative medicines are invited to attend this presentation, panel discussion and networking event.

5:30 - 6:15 PM    Registration and networking
6:15 - 6:30 PM    Welcome and opening remarks
6:30 - 7:30 PM    Success stories presentations
7:30 - 8:00 PM    Panel discussion and Q&A
8:00 - 8:30 PM    Networking

Special instructions: Alnylam is a five-minute walk from the Kendall/MIT MBTA station. Public parking is available on the street or at the Kendall Square South Garage at 350 Kendall St. Please click here to view a site map.

Registration information
Event is open to: HBA members and nonmembers
Online registration deadline: 13 June 2019
Onsite (walk-in) registration: Is allowed
    Onsite registration is not recommended. If you choose to register onsite, please arrive at least fifteen minutes
    early and be prepared to use your smartphone/mobile device to complete the transaction. Only credit card
    payments are accepted. Nonmembers are advised to create an HBA profile prior to arriving.

Is this event refundable? Yes
If yes, requests must be submitted in writing to by 11 June 2019; no refunds are available after this date.

Featured speakers

Learning objectives

1. Understand the unique challenges and opportunities with rare diseases.
2. Learn how leading biopharma organizations are taking innovative approaches to deliver transformative medicines to rare disease patients.

Registration information

The registration button at the bottom of the page will not show if online registration has closed or if the event has reached capacity. If you are a guest and the registration button is not showing, it may be that this is a member-only event. Read more about the benefits of membership or contact us about membership.

The HBA will make reasonable modifications to policies and programs to ensure that people with special needs have an equal opportunity to enjoy all of its programs. Contact us if you require special accommodations for this event.


 Registration NamePrice LevelRegular

 1 - Regular Registration

 1 - Regular RegistrationMember$30.00
 1 - Regular RegistrationMember - Euro€26.00
 1 - Regular RegistrationNon-Member$45.00
 1 - Regular RegistrationNon-Member - Euro€39.00

 2 - Sponsor Employee Registration

 2 - Sponsor Employee RegistrationNon-Member$30.00
 2 - Sponsor Employee RegistrationNon-Member - Euro€26.00

Meeting is full.

By registering for this event, you acknowledge that you may be photographed, videotaped and/or audio-taped during the course of the meeting and hereby give permission for your image, voice, or survey comments to be used in education, training, promotion and/or trade and communications media by the Healthcare Businesswomen's Association in any and all media throughout the world, without restriction as to frequency or duration of usage.