Increasing Racial and Ethnic Diversity in Clinical Research

Event description
This panel will cover the clinical research imperative of increasing racial and ethnic diversity in clinical research as the foundation for the practice of evidence-based medicine in a multicultural society. It is widely recognized that data supporting therapeutic options for people of color have been deficient because racially and ethnically diverse groups have been underrepresented in clinical trials. The shortage of data statistically powerful enough to support therapeutic options for people of color has yet to be broadly addressed by the pharmaceutical industry. Developing strategies early in the development process to reach this population will lead to good science and increased differentiation in clinical research.

The panelists will provide case histories to illustrate “best/winning” practices for successful culturally tailored recruitment and retention strategies.

     • Historic overview of progress in increasing racial and ethnic diversity in clinical research
     • Challenges that sites encounter in enrolling subjects in clinical trials
     • Cultural and linguistic competency in protocol development
     • How community mapping informs recruiting strategies and tactics
     • Best practices for recruitment and retention of communities of color

Learning objectives
1. Define why racial and ethnic diversity is critical to the practice of evidence-based medicine in a multicultural society
2. Examine the main challenges to increasing racial and ethnic diversity in clinical trial research
3. Identify best practices for recruitment and retention of communities of color

Agenda
5:30 - 6:30 PM   Registration and networking
6:30 - 8:30 PM   Program (including Q&A)
8:30 - 9:00 PM   Networking and additional discussion time

Event location
Novartis Institutes for BioMedical Research, Inc. (NIBR)
700 Main Street (Building 626)
Cambridge, MA 02139
617-335-4544

Directions

Special instructions: Metered parking is available on Massachusetts Avenue and there is a parking garage at 55 Franklin Street (entrance for garage on Green Street. See campus map)

Sponsors




Speakers
Pamela Landau (moderator)
Vice president, patient recruitment, Continuum Clinical
@PamelaLandau

Sheila Thorne
President, Multicultural Healthcare Marketing Group (MHMG)

Raolat Abdulai, PhD
MD research scientist, Brigham and Women's Hospital Pulmonary

Marjorie Zakaria, PhD
Translational medicine expert, Novartis

Elizabeth Carfioli
Associate director, patient recruitment, Alnylam Pharmaceuticals

Registration information
Event is open to: HBA members and nonmembers
Online registration deadline: July 18, 2016
Onsite (walk-in) registration: Is allowed

Member rate:
$40

Nonmember rate:
$70

Space is limited to 100 registrants.

Cancellations/refunds
Is this event refundable? Yes
If yes, requests must be submitted in writing to events@hbanet.org by July 15, 2016; no refunds are available after this date.

Event questions/support
- Chapter contact for event: Jeanne Wilson at jeanne.wilson@intelliatx.com or 610-368-0733
- Membership questions: membership@hbanet.org or 973-575-0606 ext 1
- Online registration assistance: events@hbanet.org or 973-575-0606 ext 3

Visit us online

Pricing

	Member	Non-Member
Regular registration	$40.00 / €34.00	$70.00 / €60.00

Members receive up to 50 percent discount

Event Policies

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COVID-19 Policy
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By registering for this event, I fully understand that my participation in the program is purely voluntary. I desire to participate and agree to act reasonably and prudently under the circumstances. I further understand that any HBA volunteers participating in the activity will act individually and will not represent the HBA. As a condition to my participation the activity, I waive and release the HBA and their officers, employees, and agents from any claim that I may have for any damage to property or injury to my person that may result in whole or in part from my participation.

Special Needs Policy
The HBA will make reasonable modifications to policies and programs to ensure that people with special needs can enjoy all of its programs. Contact us if you require special accommodations for this event.