Redefining Bench to Bedside: Transformative Therapies for Rare Diseases
Although uncommon in the general population, over 7000 rare diseases affect more than 30 million Americans and 350 million people globally. Rare diseases present many unique challenges for patients and physicians, from diagnosis to treatment and for biopharma companies, from discovery to commercialization.
Please join us for this HBA New England region Women in Science event to learn about unique challenges and opportunities in rare diseases. The program will feature success stories of transformative therapies, highlighting scientific breakthroughs and innovative commercialization strategies, that have ultimately delivered life-changing medicines to this small but mighty population.
Healthcare industry professionals at all levels who are interested in learning about rare diseases and transformative medicines are invited to attend this presentation, panel discussion and networking event.
Agenda
5:30 - 6:15 PM Registration and networking
6:15 - 6:30 PM Welcome and opening remarks
6:30 - 7:30 PM Success stories presentations
7:30 - 8:00 PM Panel discussion and Q&A
8:00 - 8:30 PM Networking
Special instructions: Alnylam is a five-minute walk from the Kendall/MIT MBTA station. Public parking is available on the street or at the Kendall Square South Garage at 350 Kendall St. Please click here to view a site map.
Registration information
Event is open to: HBA members and nonmembers
Online registration deadline: 13 June 2019
Onsite (walk-in) registration: Is allowed
Onsite registration is not recommended. If you choose to register onsite, please arrive at least fifteen minutes
early and be prepared to use your smartphone/mobile device to complete the transaction. Only credit card
payments are accepted. Nonmembers are advised to create an HBA profile prior to arriving.
Cancellations/refunds
Is this event refundable? Yes
If yes, requests must be submitted in writing to events@hbanet.org by 11 June 2019; no refunds are available after this date.
Learning Objectives
1. Understand the unique challenges and opportunities with rare diseases.
2. Learn how leading biopharma organizations are taking innovative approaches to deliver transformative medicines to rare disease patients.
Pricing
| 1 - Regular Registration | $30.00 / €26.00 | $45.00 / €39.00 |
| 2 - Sponsor Employee Registration | | $30.00 / €26.00 |
Members receive up to 50 percent discount
Event Policies
Photography Policy
By registering for this event, you acknowledge that you may be photographed, videotaped, and/or audio-taped during the meeting and hereby give permission for your image, voice, or survey comments to be used in education, training, promotion, and/or trade and communications media by the Healthcare Businesswomen's Association in any and all media throughout the world, without restriction as to frequency or duration of usage.
COVID-19 Policy
The HBA requires that all persons who participate in in-person events do so at their own risk and that each participant agrees to the following agreement before taking part in the activity and urges all participants to act in such a manner as to protect their own safety and the safety of others.
By registering for this event, I fully understand that my participation in the program is purely voluntary. I desire to participate and agree to act reasonably and prudently under the circumstances. I further understand that any HBA volunteers participating in the activity will act individually and will not represent the HBA. As a condition to my participation the activity, I waive and release the HBA and their officers, employees, and agents from any claim that I may have for any damage to property or injury to my person that may result in whole or in part from my participation.
Special Needs Policy
The HBA will make reasonable modifications to policies and programs to ensure that people with special needs can enjoy all of its programs. Contact us if you require special accommodations for this event.