Innovating for Rare Disease: Personal and Professional Perspectives
The Shionogi Inc. Women’s+ Forum (employee resource group) is proud to sponsor Innovating for Rare Disease: Personal and Professional Perspectives, a Rare Disease Day learning and networking event. Join us for a special evening featuring Michelle Fruhschien, an inspirational rare mom advocate and award-winning blogger at Mama Bear for Rare. You’ll hear from a multidisciplinary panel about the professional opportunities and personal life experiences that brought them to focus on rare diseases and conditions. We’ll book end the program with opportunities to network with HBA peers and others from across the industry.
Learning Objectives
- Better understand the perspectives of those in the rare disease community
- Recognize common challenges in drug development for rare disease
- Understand some of the ways in which companies are working with rare disease communities
Agenda
5:00 PM - 5:30 PM | Arrival and networking |
5:30 PM - 5:45 PM | Welcome from HBA & Nate McCutcheon, President & CEO, Shionogi Inc. |
5:45 PM - 6:00 PM | Zebras Among Us: A Rare Mom’s Perspective |
6:00 PM - 6:45 PM | Panel Discussion |
6:45 PM - 7:00 PM | Audience Q&A |
7:00 PM - 7:30 PM | Networking & Adjourn |
Additional Event Information
- Free valet parking is provided
- Online registration deadline: 28 February 2025
- Event is open to: HBA Members and Non-members
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This event is not refundable.
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Onsite (walk -in) registration: Is Allowed
Onsite registration is not recommended. However, if you choose to do so, please arrive at least 15 minutes early and be prepared to use your
mobile device to register. Only credit card payments are accepted. Non-members are advised to create an HBA profile prior to arriving.
Featured Speakers
Melissa
Moser
Global Head of Strategy and Operations, Medical Affairs,
Bristol Myers Squibb
Speaker
Annie
Curti
Director, Business Excellence Lead (a.i.),
Novartis Corporation
Speaker
Alex
Schepart
Senior Medical Director, Rare Disease,
Shionogi Inc.
Moderator
Helen
Chang
Executive Director, Rare Disease Marketing,
Shionogi Inc.
Speaker
Pricing
| Regular Registration - In-person | $30.00 / €30.00 | $45.00 / €45.00 |
| Sponsor Registration - In-person | $30.00 / €30.00 | $30.00 / €30.00 |
Members receive up to 50 percent discount
Event Policies
Photography Policy
By registering for this event, you acknowledge that you may be photographed, videotaped, and/or audio-taped during the meeting and hereby give permission for your image, voice, or survey comments to be used in education, training, promotion, and/or trade and communications media by the Healthcare Businesswomen's Association in any and all media throughout the world, without restriction as to frequency or duration of usage.
COVID-19 Policy
The HBA requires that all persons who participate in in-person events do so at their own risk and that each participant agrees to the following agreement before taking part in the activity and urges all participants to act in such a manner as to protect their own safety and the safety of others.
By registering for this event, I fully understand that my participation in the program is purely voluntary. I desire to participate and agree to act reasonably and prudently under the circumstances. I further understand that any HBA volunteers participating in the activity will act individually and will not represent the HBA. As a condition to my participation the activity, I waive and release the HBA and their officers, employees, and agents from any claim that I may have for any damage to property or injury to my person that may result in whole or in part from my participation.
Special Needs Policy
The HBA will make reasonable modifications to policies and programs to ensure that people with special needs can enjoy all of its programs. Contact us if you require special accommodations for this event.